Angelman Syndrome
AS is a rare genetic disorder affecting the 15th chromosome causing developmental disabilities and nerve-related symptoms. Most individuals are non-verbal, have seizures, walking difficulties and general delays. Individuals will require life-long care. There is no cure.
Our Story
Our friends Jackson (age 23 ) and Darcie (age 20) are a brother and sister dynamic duo who both have Angelman Syndrome. They are happy young adults who have learned to communicate through sign language, ipads, gestures and vocalizations. They live life to the fullest and enjoy many activities such as music, dance, theater, swimming and the boardwalk.
Their tiny steps, small victories and hurdles they have conquered throughout their life are an inspiration to all who meet them.
Please consider donating to Angelman's Syndrome Research
